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The numbers are in
What you are looking at are my before and after scans. Evidently I was mistaken about any previous scans after starting the trial–this is my first one. Out the door goes the fever theory (maybe–I...
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Alive and well…again
That ugly image of the open wound is my thumb. It is but one of the nine cuts that currently reside on my fingers. No amount of topical steroids, bag balm or liquid skin will make them go away. I am...
View ArticleJoy joy joy joy joy
It’s amazing what ecstasy a simple vaccine can bring. After a year of hiding in my cave I am now able to visualize that moment when I can carefully climb back out again. In fact I have the exact date...
View ArticleBack to the future
Something extraordinary is going on. I am, almost sixteen years into this shit, happier than I have ever been. I love my dog, my kids, my friends, my home. My life, though still full of uncertainty...
View ArticleAnother spin around the block
I am in some sort of semi agitated/unsettled state. It seems I can’t keep my eyes open. But I also cannot sleep. Last week I tried Ritalin and although day one was great (focus! oh rapture!) I also...
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Dream home
I have been close enough to being homeless that I never take a roof over my head for granted. Never. Ever. On walks, I instinctively look for the place I would bed down if needed. And whenever the...
View ArticleOk but not
I will be ok. But not today. Today I am taking a break from everything’s fine. Because I truly am not. Not ok with split fingertips, pustular acne, bowels that are hopelessly confused by the addition...
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Time for a proper update
Last we spoke I was post thoracentesis and home with a Z-pack. I had that thora on a Friday and by Monday I was running a fever and experiencing chills. Jess wanted me to go to the ER but I resisted....
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And a few more salient details
I am exhausted. Spent, if you will. Therefore today’s blog is a cut and paste–taken from a message I sent out to my siblings and some close friends. Another update. Not the kind I like to give. I...
View ArticleI am here.
At times, it’s been more than a little touch and go. Although I couldn’t possibly relay the whole sordid tale, I shall attempt to hit some high and low spots. TPX0131 and I had a brief and tempestuous...
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